Resources and Patient Groups

Home Page: http://www.bupa.co.uk/
Condition Info: http://hcd2.bupa.co.uk/fact_sheets/html/cystic_fibrosis.html

BUPA is the leading provider of private healthcare insurance, hospitals and healthcare services in the UK. Their website offers free online health information from trusted medical experts.

Their site takes an in-depth look at how Cystic Fibrosis can affect multiple body organs along with the lungs and the digestive system. Causes, diagnosis, screening and treatment are all covered.

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Home Page: http://www.nhsdirect.nhs.uk/index.asp
Condition Info: http://www.nhsdirect.nhs.uk/articles/article.aspx?articleId=118&sectionId=7758

NHS Direct Online is a website providing comprehensive health advice for people living in England - and is supported by a 24-hour helpline.

Learn more about the defective enzyme Cystic Fibrosis Transmembrane Conductive Regulator (CFTCR) and how it can affect the lungs, pancreas and your blood sugar levels.

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Home Page: http://www.bbc.co.uk/health
Condition Info: http://www.bbc.co.uk/health/conditions/cystic1.shtml

BBC Health offers a complete A-Z illness listing, with related articles and guides plus a messageboard where users can share their experiences.

Visit the BBC Health website for up-to-date information and resources on this condition, which affects 1 in every 3,000 births and is a problem for 7,500 people in the UK.

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Home Page: http://familydoctor.org/
Condition Info: http://www.kidshealth.org/PageManager.jsp?dn=familydoctor&lic=44&article_set=22267

Family Doctor is operated by the American Academy of Family Physicians (AAFP), a national medical organisation representing more than 93,700 family physicians, family practice residents and medical students.

Family Doctor's information is aimed at both parents and children, covering causes, diagnosis, treatment and tips on living with Cystic Fibrosis.

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Home Page: http://www.healingwell.com/
Condition Info: http://www.healingwell.com/library/cysticfibrosis/info1.asp

HealingWell.com is a thriving community and information resource for patients, caregivers and families coping with diseases, disorders and chronic illness.

Here you will find an in-depth look and the causes and effects of Cystic Fibrosis, an introduction to the 'Flutter' device along with advice on treatment via antibiotics.

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Home Page: http://www.webmd.com/
Condition Info: http://www.webmd.com/hw/health_guide_atoz/hw188550.asp

The WebMD content staff blend award-winning expertise in medicine, journalism and health communication to bring you the best health information possible.

Here you will find a full breakdown of symptoms, diagnosis, treatment and information on postural drainage and lung transplants.

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Home Page: http://cf.conncoll.edu/
Condition Info: http://cf.conncoll.edu/index1.html

"CF" is a website designed to give support to those involved with Cystic Fibrosis and to provide a forum for the discussion of topics relative to it.

Learn about all elements of Cystic Fibrosis including the lungs, the liver, the pancreas, bacterial complications, medication, nutrition, physiotherapy and more.

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Home Page: http://cystic-fibrosis-symptom.com/index.htm
Condition Info: http://cystic-fibrosis-symptom.com/symptoms.htm

Cystic-Fibrosis-Symptom.com was created to help people living with Cystic Fibrosis find information, resources, news, treatments and other aspects of this very complicated genetic disorder.

Read about all facets of Cystic Fibrosis, including therapy, nutrition, causes and symptoms. Their site also features a helpful Q&A section.

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Home Page: http://www.pulmozyme.com/patient/0_0_index.jsp
Condition Info: http://www.pulmozyme.com/patient/1_0_overview_of_cf_and_pulmozyme.jsp

Pulmozyme.com is an online resource for people with Cystic Fibrosis, parents of children with Cystic Fibrosis and the paediatric pulmonologists and other healthcare professionals who treat Cystic Fibrosis.

On the Pulmozyme website you will find a full overview of Cystic Fibrosis plus the drug Pulmozyme and the naturally occurring substance "DNase".

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